Application Materials
These are the application instructions and forms for an investigator to use in obtaining data or materials from the Scleroderma Family Registry and DNA Repository (hereinafter referred to as SFRDR). The SFRDR is the collected data and materials from single case and multi case families with systemic sclerosis (SSc). While most pedigrees are simplex, some are multiplex with two or more family members with SSc. The purpose in constructing the SFRDR is to build a resource which will accelerate discovery of the genes which contribute to disease susceptibility or modify disease severity. The application procedure is meant to be relatively simple. All concerned with building this resource hope that investigators will find that the data are easily accessible and that the materials are useful for their work. The construction of the SFRDR has been made possible by funding from the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) of the National Institutes of Health (NIH).